Tokyo, Feb. 10 -- UMIN Clinical Trials Registry (UMIN-CTR) received information related to the study (UMIN000060633) titled 'A cross-sectional survey on genetic counseling and genetic testing in hemophilia carrier care in Japan' on Feb. 9.
Study Type:
Observational
Primary Sponsor:
Institute - Tokyo Medical University
Condition:
Condition - Hemophilia
Classification by malignancy - Others
Genomic information - NO
Objective:
Narrative objectives1 - To describe the current practice of genetic counseling and genetic testing for hemophilia carrier diagnosis across specialized hemophilia care centers in Japan.
Basic objectives2 - Others
Eligibility:
Age-lower limit - Not applicable
Age-upper limit - Not applicable
Gender - Male and Female
Key inclusion criteria - The physician representative of each block core hospital designated by the Hemophilia Care Network Committee of the Japan Society on Thrombosis and Hemostasis (17 institutions, excluding Tokyo Medical University Hospital).
The physician representative of each regional core hospital designated by the Hemophilia Care Network Committee of the Japan Society on Thrombosis and Hemostasis (92 institutions).
Key exclusion criteria - Individuals who do not provide consent to participate in the questionnaire (i.e., do not agree / do not check the consent box)
Target Size - 109
Recruitment Status:
Recruitment status - Enrolling by invitation
Date of protocol fixation - 2025 Year 10 Month 05 Day
Date of IRB - 2025 Year 10 Month 29 Day
Anticipated trial start date - 2026 Year 01 Month 09 Day
Last follow-up date - 2026 Year 03 Month 31 Day
To know more, visit https://center6.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000068989
Disclaimer: Curated by HT Syndication.
