Clinical Trial: A Study on the educational use of a simulation-based card game on pediatric-to-adult healthcare transition for individuals with childhood-onset neurologic conditions: A multi-perspective study involving patients, families, supporters, and healthcare professionals (Japan)

Tokyo, Aug. 24 -- UMIN Clinical Trials Registry (UMIN-CTR) received information related to the study (UMIN000058540) titled 'A Study on the educational use of a simulation-based card game on pediatric-to-adult healthcare transition for individuals with childhood-onset neurologic conditions: A multi-perspective study involving patients, families, supporters, and healthcare professionals' on Aug. 24.

Study Type: Observational

Primary Sponsor: Institute - Institute of Science Tokyo

Condition: Condition - Childhood-onset neurologic conditions, Spina bifida Classification by malignancy - Others Genomic information - NO

Objective: Narrative objectives1 - This study aims to evaluate the educational effectiveness of the Japanese version of the 'Young Heroes Team', a simulation-based tool developed by the applicant to facilitate understanding of the transition from pediatric to adult care in individuals with childhood-onset neurological disorders, targeting patients and their families, support providers (such as special education teachers and welfare professionals), as well as medical students and junior doctors. Basic objectives2 - Efficacy

Eligibility: Age-lower limit - 10 years-old <= Age-upper limit - Not applicable Gender - Male and Female Key inclusion criteria - I. Children with childhood-onset neurologic conditions, including spina bifida II. Parents and support providers of children with childhood-onset neurologic conditions III. Healthcare professionals Key exclusion criteria - Those who are unable to independently participate in the game and respond to the questionnaire, or who are otherwise judged by the principal investigator to be unsuitable for participation. Target Size - 115

Recruitment Status: Recruitment status - Preinitiation Date of protocol fixation - 2025 Year 07 Month 21 Day Anticipated trial start date - 2025 Year 08 Month 24 Day Last follow-up date - 2030 Year 03 Month 31 Day

To know more, visit https://center6.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000066616

Disclaimer: Curated by HT Syndication.