Tokyo, May 21 -- UMIN Clinical Trials Registry (UMIN-CTR) received information related to the study (UMIN000061638) titled 'Experiences of families raising children with epidermolysis bullosa: a scoping review' on May 20.
Study Type:
Others,meta-analysis etc
Primary Sponsor:
Institute - Hokkaido University
Condition:
Condition - Epidermolysis Bullosa
Classification by malignancy - Others
Genomic information - NO
Objective:
Narrative objectives1 - The objective of this scoping review is to synthesize domestic and international evidence regarding the parenting and caregiving experiences of families raising children with epidermolysis bullosa, and to derive implications for future support.
Basic objectives2 - Safety
Eligibility:
Age-lower limit - Not applicable
Age-upper limit - Not applicable
Gender - Male and Female
Key inclusion criteria - Studies investigating the experiences and perceptions of families raising children diagnosed with epidermolysis bullosa (regardless of disease subtype).
Key exclusion criteria - Studies focused exclusively on end-of-life care.
Studies reporting solely from the perspective of healthcare professionals without incorporating the family's perspective.
Recruitment Status:
Recruitment status - No longer recruiting
Date of protocol fixation - 2026 Year 05 Month 20 Day
Date of IRB - 2026 Year 05 Month 20 Day
Anticipated trial start date - 2026 Year 05 Month 20 Day
Last follow-up date - 2027 Year 03 Month 31 Day
To know more, visit https://center6.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000070526
Disclaimer: Curated by HT Syndication.
