Tokyo, March 1 -- UMIN Clinical Trials Registry (UMIN-CTR) received information related to the study (UMIN000060728) titled 'The relationship between participation of patients in the Intractable Diseases Council and the the support systems for patients with intractable diseases' on March 1.
Study Type:
Observational
Primary Sponsor:
Institute - Ibaraki Prefectural University of Health Sciences
Condition:
Condition - Intractable diseases
Classification by malignancy - Others
Genomic information - NO
Objective:
Narrative objectives1 - This study aims to clarify whether participation by patients with intractable diseases in the Local Council on Measures for Intractable Diseases and sharing of their needs with relevant organs will promote cooperation among relevant organs and influence the support systems for patients with intractable diseases based on the needs of patients.
This study clarifies the relationship between the participation of patients with intractable diseases in councils and the support systems for patients with intractable diseases, and to help revitalize the councils.
Basic objectives2 - Others
Eligibility:
Age-lower limit - Not applicable
Age-upper limit - Not applicable
Gender - Male and Female
Key inclusion criteria - Public health nurses in the intractable diseases assigned department of a prefectural government, cities establishing a health center, and special wards in 461 locations nationwide.
Key exclusion criteria - 1.Administrative staff at public health centers.
2.Public health nurses other than those in the public health center's intractable diseases assigned department.
Target Size - 461
Recruitment Status:
Recruitment status - Preinitiation
Date of protocol fixation - 2026 Year 02 Month 24 Day
Anticipated trial start date - 2026 Year 06 Month 01 Day
Last follow-up date - 2027 Year 03 Month 31 Day
To know more, visit https://center6.umin.ac.jp/cgi-open-bin/ctr_e/ctr_view.cgi?recptno=R000069401
Disclaimer: Curated by HT Syndication.
